CDH and support group in Malaysia

Firstly, some promising new research being done with amniotic stem cells. This research could mean big improvements in treating congenital heart valve defects in newborns. Got this from Sophia's dad. Thanks Michael.

Here is a link to an article in the Washington Post.

And here is a link to the Associated Press coverage from the meeting.

One thing that I feel really sad about is that here in Malaysia we lack support group for CDH families. I have to fall back on support groups that are in other parts of the world. They are great but sometimes I wish there was something closer to home. Parents I could meet to share experiences to to just listen to when one needs to talk. I would love to meet the brave little children with CDH who have gone through surgery or who are about to go through surgery.

For now, I wouldnt even know where to start if I wanted some contacts in Malaysia except for the one or two that I already know through friends. I guess the only place to meet them here is at the hospital when they visit their cardiologist.